Lucy und das Jansen-de Vries Syndrom
“INTELLECTUAL DEVELOPMENTAL DISORDER WITH GASTROINTESTINAL DIFFICULTIES AND HIGH PAIN THRESHOLD” (Omim Datenbankeintrag). Entwicklungsverzögerungen in diversen Bereichen, insbesondere Schwierigkeiten bei der Entwicklung der Sprache, Verhaltensauffälligkeiten und unendlich viele andere kleine Dinge, die unsere Tochter zu einer einzigartigen Person machen. Die Diagnose Jansen-de Vries Syndrom bekamen wir…
Welcome to Pasta and Peas
Pasta and Peas, the two things my children ate first when they actually started eating on their own. Something that might not even be worth mentioning for most parents. But with one of our children having the Jansen-de Vries syndrome it is something we will…
